“What Do You Have, Again?”

“So, what do you have, again?” he asks of me.

The “he” has been family for over 9 years.

What I have (again) will not, I guarantee,

be one of those things that one day disappears.

Please learn what it’s called, if you care for me yet.

It fills up each moment, asleep or awake.

Just say it enough that you’ll never forget

and show me I’m worth the half hour it’d take.

“And how do you spell that?” … like Google won’t know.

Just get sort of close and it fills in the rest.

Your ignorance, now, is a choice that you show

by asking instead of just trying your best.

“I guess there’s no cure then?” he asks with wink. 😉

Well, yeah, but I figure that’s cheating my fate. 😉

Your effort shouts louder than words what you think.

You speak sympathy your inaction negates.

We do this each Christmas, and sometimes in June.

We’ll do it next year and the year after that.

And each time he asks, I shall feed with a spoon,

just like the ten month old I once babysat.

 

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2 Comments (+add yours?)

  1. Charisssa
    Jul 22, 2014 @ 13:10:27

    This one struck me hard, as I’m sure it felt to write. I shared it on my health group website, with several of your others. They LOVED the “Side Effects” poem, and I know they will “enjoy” (though that’s not really the right word…), too.

    Like

    Reply

  2. aditigrover
    Jul 22, 2014 @ 15:46:18

    This is so brilliantly written and so accurate to the ignorance people show towards the existence of chronic illnesses.

    Like

    Reply

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